2/28/2012
Treatment #6 tomorrow
I am back in Philadelphia getting ready for my 6th round of immuno in the morning. My Mom came with me this time and I am very happy she is here. Billy wants to be here so badly but I asked him to take a break this month. I really believe it is harder on him than it is on me when we come up here so I wanted him to have a little "time off." My Mom jumped at the opportunity to come with me and it will be good for Billy to save up some vacation time...and somebody has to be home to lead the kickball and dodgeball teams to victory! Tomorrow is Leap Day and my friend Rachael told me that she thinks everything that happens tomorrow is magnified by four. I think this is the case for those cancer killing drugs they are going to give me tomorrow!
2/27/2012
Team Kenan Benefit was a HUGE success!
Thank you, thank you, thank you to everybody who came out an supported us at the Roost last Monday night!!! It was an incredible success and I have no idea how it was put together in such a short amount of time. It is clear that a lot of hard work and effort was put into this event. The Roost was packed from 6-9 and our friends and family worked SO hard waiting tables, running food, bussing tables, etc! Everytime I looked around the room I just couldn't believe so many people came out to support ME. It was a very exciting and humbling experience. My fight with ocular melanoma has made me realize what generous, selfless, and down right amazing people I have in my life. They are teaching me to be a better person and I pray that one day I can pay it foward to someone else.
We raised over $7,000 at The Roost alone through tips, raffles and a silient auction. Many folks who were unable to attend have mailed donations to the Kenan Koll Cancer Fund. Thank you. This money will be such a huge help to me as I continue to travel to Philadelphia for treatment and medical care. At one point Dr. Sato mentioned a clinical trial which would require me to go to Philadelphia once every two weeks. After he said this we were not quite sure how we would make it work. Thanks to your contributions clinical trials like this are now a very feasible option!! Of course, we hope that next time we will get the news that the tumors are no longer visable and I will not have to go down the route of a clinical trial. At the same time it is very comforting to know that I am able to take that step if necessary!
Here are a few pictures from the Team Kenan benefit!!
Our great friends/family/volunteers
"Team Kenan" Shirts
My best friends from 7th grade, Christine & Katie, drove all the way to Charleston for the benefit!
We raised over $7,000 at The Roost alone through tips, raffles and a silient auction. Many folks who were unable to attend have mailed donations to the Kenan Koll Cancer Fund. Thank you. This money will be such a huge help to me as I continue to travel to Philadelphia for treatment and medical care. At one point Dr. Sato mentioned a clinical trial which would require me to go to Philadelphia once every two weeks. After he said this we were not quite sure how we would make it work. Thanks to your contributions clinical trials like this are now a very feasible option!! Of course, we hope that next time we will get the news that the tumors are no longer visable and I will not have to go down the route of a clinical trial. At the same time it is very comforting to know that I am able to take that step if necessary!
Here are a few pictures from the Team Kenan benefit!!
2/15/2012
TEAM KENAN BENEFIT...MONDAY FEB. 20!!!
Below is the "Team Kenan Benefit" flyer that Jen sent out on Facebook. We are trying to spread the word as much as possible to see a great turn out. Knowing that not everyone is on Facebook (thanks Sue), here is the information and flyer. Feel free to pass this along to anyone. We hope to see you at the Roost between 6 and 9 on Monday night! Thanks!
If you have any questions call Jen @ 843-864-6715
The Koll's address is:
1390 White Dr.
Charleston, SC 29407
If you have any questions call Jen @ 843-864-6715
The Koll's address is:
1390 White Dr.
Charleston, SC 29407
2/01/2012
it is good to be home!
We are back home in Charleston!
Yesterday, Dr. Gonsalves performed my 5th round of immunoembolization and she attacked the tumor on the upper left side of my liver hard. She believes she was able to cut off the blood supply to this lesion and she said it was "glowing," which means the medicine attached to the tumor. Once I was off of my 6 hours of bed rest they sent me in for a CT scan to make sure that they were able to hit the tumor. After reading the results they believe they were successful!
I am suffering from some heartburn and fatigue but those symptoms should pass within the next day or two. I just keep reminding myself how much worse the side effects could be!
I go back up to Philadelphia on February 29th for round #6. That means I have 4 weeks off to live life as normal! We are looking forward to all of the fun in store!
Here is a pic of us in front of the famous Philadelphia LOVE sign:
Yesterday, Dr. Gonsalves performed my 5th round of immunoembolization and she attacked the tumor on the upper left side of my liver hard. She believes she was able to cut off the blood supply to this lesion and she said it was "glowing," which means the medicine attached to the tumor. Once I was off of my 6 hours of bed rest they sent me in for a CT scan to make sure that they were able to hit the tumor. After reading the results they believe they were successful!
I am suffering from some heartburn and fatigue but those symptoms should pass within the next day or two. I just keep reminding myself how much worse the side effects could be!
I go back up to Philadelphia on February 29th for round #6. That means I have 4 weeks off to live life as normal! We are looking forward to all of the fun in store!
Here is a pic of us in front of the famous Philadelphia LOVE sign:
Subscribe to:
Posts (Atom)