back to Charleston!

We are at the Philadelphia airport waiting for our flight home!

I am feeling great today!  I am still a little sore and I have some lingering heartburn, but that is a small price to pay.  I just keep telling myself that the pain is due to the drugs going to work and killing those cancer cells!  Billy has been taking great care of me and we are excited to get back home to Charleston.

My next appointments are scheduled for December 5th and 6th.

Sleeping Beauty

Sorry for the late post...it's been a long day for the both of us.
Kenan checked in at 6:30 this morning.  She changed into her gown and we played a heated game of "words with friends" then they were ready for her at 8:30 am.  This is when I get to eat breakfast with Betty White (our favorite Holiday Inn Express worker). 
Dr. Gonsalves came out at 11:15 to tell me how the procedure went.  The last procedure she treated the right liver lobe and used 2 arteries, which took 90 mins.  This procedure she treated the left lobe.  The procedure lasted 2 hrs and she used 2 new arteries and 1 from last time.  This also means that she administered 1.5 times the drug (Kenan is a tough cookie)!
The hardest part is the 6 hours of bed rest that follows the procedure.  5:15pm was the magic number that the Dr. gave me in the recovery room for the end of bed rest.  Kenan made it!  She slept 5.5 hrs which made it a little better, but still not an easy task.
Now she is off of bed rest but the drug is giving her bad stomach pains.  The left side of the liver is very close to your GI tract so when they administer the medicine it can cause terrible heartburn/stomach pains.  She is getting pain meds and sleeping so she will be ready for discharge around 9am tomorrow.
We thank everyone for the kind words and can't wait to get back home.  No picture this time...hospital doesn't have wifi (boooo).
Love
Kenan and Billy

Treatment #2 tomorrow!

Billy and I just arrived at our hotel in Philly!  Thanks to some very generous donations we were able to fly up here and stay at our hotel for free.  Thank you, thank you!  It made our trip so much easier.

I check into the hospital at 6:30 am for my next round of immunoembolization.  Dr. Gonsalves and her team will treat the rest of my liver and I will spend the night so they can observe me.  Billy will send an update tomorrow once I get out!

Now, we are off to try a new restaurant and enjoy and evening together!

In and Out

She's Out!  She was admitted into the hospital at 12:00 est.  She was scheduled to go back into surgery at 3:00 but you know how doctor's appointments are.  She finally was taken back at 5:15pm for surgery.  They told us it would take about 3 hours for before we could see her again.  She was done by 7:00PM!!

Kennny, Sue and I, went to dinner at Marathon (just down the street).  It was yummy!  After that we went to a vegan place down the road to get Kenan a salad that she had the night before (which was difficult for Billy to make via phone).  I made her the exact salad she had the night before.

We made it to the eighth floor waiting room to check in and wait for the doctor.  We were waiting not even 5 minutes before Dr. Burger came in and sat down to explain the procedure.  Everything went great!!!!  The sutures are on the inside and the incision has butterfly band-aids holding it together.  She will be in the recovery room for about an hour before being released.  We are going to leave it up to her when she feels like heading home.  Which before we left the hotel this morning....she made it clear that we were heading home.  The only thing the doctor asked was that we stop a couple times to let her walk. 

Hopefully she will want to sleep in the hotel room tonight and head out tomorrow morning.  It will all depend on how she feels. 

Thank you again for all of your continued support and prayers!

Mommy and Daddy come home!!

KENAN is OUT!

Kenan is out of the Thomas Jefferson Hospital. She was released this morning around 10:30. She did remarkably well with her treatment. She has decided the date of her second treatment, Friday, November 4th.

Kenan just received a phone call from Dr. Burger and she will be put on the operating schedule for tomorrow. So, her freedom is short lived. She will have out patient surgery tomorrow to operate on her gluteus maximus. We anticipate spending Thursday night here in the hotel and leaving for home on Friday! Of course, how Kenan is feeling will dictate our travel plans.

Kenan is considering a walk to Chinatown or a movie at the moment. Billy, Kenny, and I will tag along :). Yep, she's remarkable!

Since this is a shorter update, I'll fill you in a little on Kenan's brother, Pete. He is attending officer training school at Fort Sill, Oklahoma. We are only a text message away. It was touching for "the Mom", when Kenan asked to have Pete call her yesterday. They had the opportunity to catch up last night. After Pete's 13 hour day of work!

Wishing you could be here with us Pete. We miss you!

Thanks for checking in on us.

Kenan's Mom

From The City of Brotherly Love

Kenan, like Rocky, ready to fight!

Hi All,

Sorry for the delay today, but we all spent the day with Kenan and the hospital did not have WI-FI, so Billy was not able to update the blog from the hospital room. But, how nice is it that most of you have an update first thing this morning. For the night owls, you have seen this already.

It was another early morning for Kenan and Billy. They arrived at Thomas Jefferson Hospital this morning or yesterday morning (Tuesday) at 6:30 am. Kenan was prepped for her procedure (immunoembolization) and went in approximately 9:00 am.

Her doctor, Dr. Gonsalves was telling Billy, Kenny, and me that she was fine and in recovery approximately 10:20 am. We all like Dr. Gonsalves very much. She is very personable and we talk with her easily. Dr. Gonsalves reported that she was able to treat 3/4ths of Kenan's liver. She was able to treat the largest tumors. The tumors glowed afterwards and that is a good thing, because that means the medicine stays attached to the tumors and works its miracle. She seemed very pleased with her work and therefore, we are all pleased. We all got to go back with Kenan while she was in recovery and before she was taken to her room.

I understand Kenan had some conversations with the nurses about running that she didn't remember later. The nurses were asking Kenan if she was a runner. They could tell by her low heart rate. I was impressed. Kenan has been preparing for a half marathon and had worked herself up to 8 miles. Even more impressed, now.

On the advisement of Kenan's friend Meredith, Kenan was able to secure a private room on the third floor. Thanks Meredith! And Meredith was right, the third floor staff has been great to us today. The doctors and nurses have been exceptional. All very professional and so attentive. It seems that the ratio for patients to nurses is phenomenal.

After Kenan arrived in her room, her instructions for recovery were to lay flat on her back for 6 hours. She was doing great. Then after 5 hours (1 to go), she started to bleed from her incision and the clock started back over. So, another 6 hours flat on her back. We were told that can often happen, but we were bummed! It became more and more difficult for Kenan to remain flat and comfortable. At 10:00 pm tonight we all celebrated with Kenan when she could finally get on her feet. What a joyous moment!

Dr. Sato came in to check on Kenan around 4:00 pm. It was a good report, as well. We like him very much and he has a phenomenal team. He will check on her again in the morning around 8:00 am and hopefully, Kenan will be released.

Billy out ranked me tonight and he got to stay in the room with Kenan. Her Dad and I are only a few blocks away and that makes it nice. Of course, Kenan is more concerned about Billy, her Dad, and I than herself. But, as her Dad told her, speaking for all of us, "we would not want to be anywhere else". We do nothing compared to my brave, positive, "full of grace", little girl. She was definitely the best patient of the day!

We are anticipating a visit from Dr. Burger tomorrow morning. On the advisement of Dr. Sato, we are hopeful that Dr. Burger will be able to remove the tumor from Kenan's gluteus maximus. This procedure will be done as outpatient surgery and we tentatively hear this may be possible for Thursday afternoon. More to follow on those specifics as they develop. Therefore, Kenan will recover in the hotel room and perhaps we will return to the south Friday.

The weather here in Philadelphia has been perfect but, there is no place like home.

Kenan and Billy will return to Philadelphia in 4 weeks. Of course, I want to come too, but not sure. In 4 weeks we will know the results of the procedure today and from my layman's vantage point, I believe this procedure was tolerated well and therefore, a second procedure should follow.

In closing on this update, thank you from the bottom of our hearts for all of your support. The prayers are so appreciated, needed, and wanted. Keep 'em coming! Thank you John O and Melissa for organizing the Prayer Warriors! We all know and believe that with the help of God, Dr. Sato, Dr. Gonsalves, Dr. Burger, and their teams that this will heal Kenan.

Although we haven't had the time to personally respond to all of your emails, text messages, phone calls, etc., we have received them and want you to know how helpful they have been to us all. With each new response, we separately and collectively are truly touched by the most amazing words of endearing comfort and support. So, once again, a simple thank you.

PS: Jetty, Kenan and Billy will be home soon. Thanks Emily and Megana for taking such good care of her.

Come home soon, I miss you!

Kenan's Mom

We have a plan!

We started off today at 6:30 am with a CT scan and MRI at the Bodine Center at TJUH.  After the scans we were 5 minutes late for the Holiday Inn Express breakfast.  We did a little sweet talking and they pulled everything back out for us.  After a quick shower (and some shopping at H&M), we were back at Thomas Jefferson for the long awaited meeting with Dr. Sato. 

Kenan was able to meet all of the nurses that she has been e-mailing with over the past couple weeks waiting for this visit.  It was great to finally put some faces with names.  Dr. Sato made his appearance and after a short examination he asked what questions Kenan about treatment.  Kenan pulled out a binder with all of the treatment options that she has researched.  He explained why some options were not the best, and told us that Immoembolization is the best option. 

We also met with Dr. Gonsalves who is the interventional radiologist that will be administering the immunoembolization.  She explained the procedure in depth and also reitterated why this procedure is the right path.

We will be at the hospital tomorrow morning at 6:30 am to check in and get things started.  They said the procedure itself will only take about 90 mins to complete.  After that Kenan will have to lay flat on her back for 6 hours.  A friend and fellow patient, Meredith, told us to come prepared with a pillow and egg crate.  Sue ran right out and scooped that up so Kenan could be as comfortable as possible after the procedure!  She should be discharged on Wednesday morning around 9:30 - 10:00 am. 

After Dr. Sato examined Kenan today he recommended surgically removing the lesion from Kenan's glut.  We can feel the lesion through Kenan's skin so they hope that it is in a place where it can be easily removed.  A surgeon is going to come and visit us tomorrow or Wednesday to see if it is possible to do. Our hope is that they can and they will be able to perform the surgery on Thursday!  This will be treating all areas of concern in one week!

Thank you John O and Melissa for starting the prayer warriors for tomorrow. 

Love Billy & Kenan.

Attached are a few pictures!


Checking out the Liberty Bell...

Picture of the Colbert/Koll family after we ran up the stairs of the Philadelphia Museum of Art like Rocky!

We couldn't resist this one!  Em sent a picture of Jetty waiting for a blog update :)